empowering hope BY transforming lives impacted by rare disease
Join us in supporting those living with a Rare Disease
Who We Are
Our Mission
The Live Like Maddie Foundation is dedicated to celebrating the incredible journey of families who bravely choose life for their child with a rare disease, inspired by the courage of our cherished daughter and sister, Madison, who faced Dup15q Syndrome with unwavering strength.
Our Values
Our organization is built on a foundation of compassion, integrity, and faith. We believe in treating everyone with dignity and respect, and we are committed to using our resources in the most effective and efficient way possible.
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We are a nonprofit organization supporting families living with a rare disease. Join us in making a difference in the world today!