Established in 2024, the Live Like Maddie Foundation is already making a meaningful difference by helping to ease the additional financial burdens faced by families raising individuals with disabilities or rare diseases.
Long Branch, NJ. Since birth, Kaory and her family have faced the challenges of Dravet Syndrome—a rare genetic epilepsy marked by temperature-sensitive febrile seizures, treatment-resistant epilepsy that begins in infancy, and developmental differences. The Live Like Maddie Foundation is helping to alleviate the high costs of the specialized seizure therapies and medications that Kaory relies on.
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