Since birth, Kaory and her family have faced the challenges of Dravet Syndrome—a rare genetic epilepsy marked by temperature-sensitive febrile seizures, treatment-resistant epilepsy that begins in infancy, and developmental differences. The Live Like Maddie Foundation is helping to alleviate the high costs of the specialized seizure therapies and medications that Kaory relies on.
Meet Mathias — One of Our Newest Warriors!
We’re thrilled to introduce Mathias, a courageous young fighter and a proud new member of the Live Like Maddie family!
Thanks to the generosity of the Live Like Maddie Foundation, Mathias received a custom-designed adaptive bike—created just for him. This incredible gift is more than just a bike: it’s a tool for greater mobility, a boost in independence, and most importantly, a source of pure joy.
Ride on, Mathias. We’re cheering you on every step of the way!
Meet Denise 💜
We’re so excited to share that Live Like Maddie has provided Denise Adaptive Smart Blinds for her home! These innovative blinds bring in the sunlight while giving Denise more independence and control over her environment.
With just a touch or a voice command, Denise can open and close her blinds—making her home brighter, more accessible, and tailored to her needs.
This is what empowerment looks like. This is what living like Maddie means. 💜
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